Crohn’s Just Keeps Giving…

October 16, 2011

So, until recently, I have been living pretty uneventfully for a while after surgery. Like I’ve mentioned before, actually having the ileostomy has made my life much better than before. Crohn’s disease doesn’t like to give up though. I still have my rectal stump that was left in after my initial surgery, and I’ve started having some big issues with that.

I noticed there was a huge problem when I was getting a lot of irritation in the crack of my butt. I had a lot of discharge from my rectum, but I just thought that was normal mucus discharge and that the irritation was from moisture. I thought that until I actually had a hole in the crack of my butt. A deep hole. A hole that I couldn’t really see the end of. That was oozing pus. Pretty freaking nasty.

So I went to my doctors (who I love, by the way, because they always take care of me so well), and I was sent to get a CT scan. The results showed that I had an abscess around my rectum. After consulting with my surgeon, she surgically cut the hole open more so that it drained easier, and it’s actually been less painful since then. However, now I have a gaping wound on my butt that I have to keep gauze dressing over.

While I was under anesthesia, she took a look at my remaining rectum with a scope. Apparently, Crohn’s is attacking it so badly, that it basically ruined the closure from my surgery. A little hole must have formed somewhere that is now allowing bacteria from my intestines leak into my pelvic cavity.

My surgeon tells me that I won’t be able to avoid having yet another surgery to remove the remaining part of my rectum and anal sphincter. I’m pretty nervous about it. She told me that she’s not sure she’ll be able to close the wound surgically because of the bad infection. I think having my rectum removed and having another large, gaping wound is what I’m most afraid of. We’re hoping to do the surgery during my break from school, which is pretty soon. So we’ll see how it goes, I guess…

I’m currently on a bunch of antibiotics and keeping up with dressing this really scary looking, draining open wound. I’m pretty nervous about having to go through this yet again. I guess this means it will be gone for good though. Finally.


2 Responses to “Crohn’s Just Keeps Giving…”

  1. Paul Tascarella said


    I hope that in your last sentence you accidentally wrote “gone” but meant “done.” When I had my surgery (33 years ago yesterday) I had the colon and rectum removed at the same time. Your butt will hurt for a few days but as you say, you’ll be finished…not gone I hope (hahaha).

    Ostomately yours,


  2. Its like you read my mind! You seem to know so much about this,
    like you wrote the book in it or something.
    I think that you could do with some pics to drive the message home a bit, but
    instead of that, this is great blog. A fantastic read.
    I will definitely be back.

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